Sort by: Hits | Alphabetical Links |
Cherubs
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
www.cherubs-cdh.org Read more |
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Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
www.cafamily.org.uk Read more |
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Fibrous Dysplasia Support Online
For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
members.cox.net/fdsupport/index.html Read more |
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Human Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
www.hgfound.org/ Read more |
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Kindler Syndrome
An article and case study of this rare disease. Includes links.
digilander.libero.it/camdic/KINDLER.html Read more |
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National Organization for Rare Disorders, Inc.
- Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
www.rarediseases.org/ Read more |
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Nomid /Cinca
Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm Read more |
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Office of Rare Diseases
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
rarediseases.info.nih.gov/ Read more |
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Tetrahydrobiopterin
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
www.bh4.org Read more |
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| Number of directories: 10.389
Number of links: 163.566
Last updated: Feb 12, 2008. |
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